
We didn't have a very fun Memorial Day weekend. Laynie ended up getting sick on Friday morning. Saturday she was much worse. I was going to wait to take her into the doctor because I hate seeing a doctor that doesn't know her and all of her medical history. I thought I would give it one more day and then take her in on Sunday if she wasn't feeling better. Sunday she was so miserable and I knew she was super sick so we went to Community Care. They did a chest x-ray and said that she had pneumonia. I was so heartbroken for her. They said since we had a pulse oximeter and oxygen at home that we could take her home and keep her out of the hospital. Sunday night was horrible. I sat watching her every second. I watched the way she was breathing. I watched her oxygen level go up and down. I kept listening to her lungs. I seriously was a nervous wreck. I knew we had to take her to the hospital. I have never gotten such a strong feeling, it was basically a loud scream in my ear to take my little baby to the hospital to be better monitored. We got there and after many hours and pokes and screams she was nestled in her hospital bed. She got 2 IV antibiotics, they decreased her feedings because she kept vomiting and just kept a close eye on her. She stayed for Sunday and Monday night and we came home Tuesday evening. She is doing well, but is still pretty sick. Her doctor said that she will probably take a month to be better! That is a long time!!!
It was a different experience than being at Primary Children's. We really liked our nurses but none of them had ever seen a baby with a trach before. The protocol at Primary's with a trach patient is they have to have the patient in view at all times. They bring a desk and sit literally outside the door with the door open. They watch her like a hawk. It is almost annoying, but I like it! At the hospital here I was telling her nurse how far to suction her and she said, "Oh no, I don't suction". I was a little surprised, but I was fine doing it all the time if she didn't feel comfortable. She shut the door all the way and said, "Goodnight"! It was just a little different, but it was still okay! Nothing beats Primary Children's!
Now we are even more paranoid about germs and taking Laynie out. This is the reason why we don't want her getting sick. Just a normal cold turns into pneumonia for her. It is so sad and I feel so bad for her. I guess she still needs to be protected from the outside world.
I really missed Drake while I was taking care of Laynie. He had a blast with his grandparents and cousins though. He has said, "Mommy, Drake missed you" probably 75 times today. On top of saying that he hugged me every time. This seriously melted my heart and totally made my day. Thank you Drake for being so understanding and making your mommy feel so much better. I love you!
So, overall our weekend totally stunk... but our little girl continues to be so strong and fights so hard through all of her obstacles. She has changed me in so many little ways. I am forever grateful for her and what she has done for me. I never imagined that being a mother would include so much heartbreak, sadness, worry, and pain. I also never imagined how much these two little kids could totally own my heart and bring me so much JOY and HAPPINESS. I am so thankful these two little kids got sent to me. They make me the happiest mom in the world!
GET BETTER SOON LAYNIE!!! WE LOVE YOU!