Our family is participating in the Flat Charlie Project!!!
It is a little paper guy that travels all around the world to different CHARGE families.
During his stay with us we are supposed to show him our part of the world, raise awareness about CHARGE syndrome, and do some fundraising for the CHARGE Syndrome Foundation.
As everyone knows, Laynie has CHARGE syndrome and has faced so many health challenges.
CHARGE syndrome affects every person differently and many doctors and other health care professionals have never even heard of CHARGE syndrome before.
It is our families goal to raise money for further research and outreach for children affected with CHARGE syndrome. If you would like to help in our efforts, you can go here: http://FifthAnnualCIFC.kintera.org/laynieflatcharlie
Thanks:)
Laynie meeting Flat Charlie
Also, here is a video that I made for a class project for Trevor's brother. It shows how Laynie has been affected by CHARGE syndrome!!!
No comments:
Post a Comment