I wanted to share this blog post. Another CHARGE mom wrote it and it is about the mortality rate in kids with CHARGE. I think she did a great job in being real and honest. It's not a CHEERY post and it is something that I hate to even think about, but it is real and when we lose kids in our "CHARGE family" it literally breaks my heart! The mortality rate in kids 5 and under is 15-20%, that is 1 in every 5-6 kids! I wanted to share this so our friends and family know why we are so paranoid about Laynie getting sick and why we wash our hands so much they bleed:) Thanks for taking a minute to read it!!!
http://allthathathlife.wordpress.com/2013/12/23/1-in-6/
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